The month of April always reminds me of the day Trey was activily placed on the transplant organ donation waiting list. That day brought tears knowing he was that sick. It was also a happy day knowing he was now activily on the list and had a chance for surviving but what if an organ did not become available.

Please consider being or organ donor if you already are not. Please share with others your intentions. Spread the word that organs are needed and that almost 18 people die a day waiting for a donated organ. Did you know that almost 6,700 people in the US alone die a day.

Thank you to all who are registered as organ donors and thank you to all families that have lost a loved one and whose organs were donated.

It looks as if we are moving right into summer. Truthfully I am ready for warm weather.

I missed a few months of posting. Just not enough time. Being a Girl Scout leader this year is taking a lot more time then I thought. I do enjoy it and I think the girls are having fun.

The 3rd week in February Trey was back in the hospital in Omaha. Since the Saturday before his Tuesday admit he had been complaining of tummy pain and he could hardly move. We ended up in the ER as Omaha suggested. They gave him an enema and xrays didn’t show anything. The enema moved very little. As instructed on Monday I took him to the museum to try to get him active. I knew it was serious when he would just cry and could not even bend over. His pediatrian didn’t like the feel of his tummy and decided incase there were blockage he should be sent to Omaha. Labs were good and they tried laxatives and everything. Nothing was working and he was in some serious pain that he couldn’t even sit up in bed. On late Wednesday he had a barium enema to help loosen things up. It worked and there were no signs of blockage. Why he was constipated is a mystery? He has never has constipation, in fact we have always fought the loose stools. We were happy to go home on Thursday. They took him off his iron medicine to see how he would do. When we got home he had a 102 fever. The fever went away the following Wednesday he had his teeth surgery.
The iron and all of his meds had ruined his teeth and they looked gray. The surgery went good and his teeth look great. We had some extra time post op because he was running a 102 fever. They got it come down some and were able to discharge us. As the fever continued a cough started. That Saturday he was diagnosed with bronchitis. That lasted about a week. We were ready to move into the month of March. Except the 1st week in March I ended up with bronchitis. I felt awful!

He a check up in Omaha the last part of March. He kept saying no Omaha, I don’t like Omaha. The appt went great. In fact so good that they decided to leave him off the iron and do iron studies in a couple of months. They also decided to take him off another med he has been on shortly after transplant. Labs will tell us if needs go back on that one. If he would have some good labs they would like to go to every other month. Something he has never gotten to do. Latest labs weren’t bad but his platelets are back down to 81. We will see where numbers are next time.

We had a great Easter. We spent some time in Columbus. We went saw great grandma Buettner and great grandpa and grandma Sackett. It was nice visiting with them.

Trey is loving the warm weather. His currently still likes Batman. When I tell him him he is going to get hurt he says I am Batman.

We attened the Nebraska Spring game and we all enjoyed it. With three kids half time was enough.

We are all looking forward to camping. Maybe this weekend depending on the wind.